created by SEND Partnership Service published on 08 February 2022

The Parent Carer Wellbeing Study is a national survey of parent carers in England and the findings will be used to develop better support for carers in crisis.

Led by the University of Exeter, the survey has been co-designed by carers and there’s no limit on the type of illness or disability the child can have. Parents, step-parents, foster parents, kinship carers, and legal guardians are all welcome, as long as they live in England and the child (or at least one of the children they care for) is under 18.

If you live in England and care for a child under 18 with a long-term illness or disability, you’re invited to share your experiences in a short survey. Go to to complete the survey online or request a hard copy. 

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